Why I Started Hope for Sca1

Spinocerebellar Ataxia Type 1 (SCA1) has severely impacted my family, and witnessing its effects firsthand is what inspired me to create this website. My goal is to raise awareness about this rare genetic condition and support ongoing research efforts. By helping more people understand this rare disease, I hope to contribute to a future with a possible cure.

10/1/20261 min read

Awareness

Join us in supporting SCA1 research and stories.

Hope for SCA1, inc. is an Illinois nonprofit corporation dedicated to education and awareness.

EIN: 39-3443248

contact: sblake@hopeforsca1.org

The following research initiatives are led independently by academic institutions. Hope for SCA1 is not affiliated with, does not receive funds from, and does not manage donations to these programs.